Contact Us

The Proteus Syndrome Foundation, a 501c3 not-for-profit organization, is dedicated improving the lives of Proteus patients by funding AKT1 research. We focus on providing family support in the form of education and networking individuals living with Proteus syndrome with other families and medical professionals.

If you have questions regarding the PROTEUS SYNDROME FOUNDATION, items in the auction, bidding, email communications, events or other general information, please contact kim@proteus-syndrome.org.

Mailing Address

PROTEUS SYNDROME FOUNDATION
9296 Penobscot Court
Colorado Springs, CO 80924
Phone: 719-660-1346

Website - https://www.proteus-syndrome.org